With the realization of the Kitesurf World Cup, which starts at 11:30 am this Wednesday on the beaches of Salinas del Mar, in Juan de Acosta (Atlantic)promotes tourist services and is expected to move economic revenues of nearly one billion pesos.
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The event brings together hundreds of visitors, including athletes, tourists and press from more than 15 countries from the world, who have already begun to arrive and will be in this area of the department of Atlántico until next Sunday, when the competitions conclude.
In accordance with the governor of the Atlantic, Elsa Noguerabeing considered a “travel sport”, the kitesurfing It has a direct impact on the tourism value chain.
“We have the necessary conditions to hold major sporting events of this type. We have hotels, restaurants and a strict health device that has been deployed to attend to this unprecedented event in the region and the department,” said the president.
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The economic impact that the event will have corresponds to the income generated by the establishments in the area, thanks to the influx of travelers and visitors, which will result in the strengthening of the economy of the Atlantic coastal area, which not only has beautiful beaches but with a whole cultural and gastronomic wealth.
We have hotels, restaurants and a strict health device that has been deployed to attend to this unprecedented event in the region and the department.
“With this sports tourism event we estimate revenues of one billion pesos, in addition to the generation of employment that is already taking place for the inhabitants. Today we can say that, in the hotels allied with the event, 104 new direct jobs have already been generated and we are just going to start the World Cup,” he said. the Secretary of Economic Development, Miguel Vergara.
He also indicated that there is already significant growth in hotel occupancy in the area, prior to the start of the event, which is reflected in an average occupancy of 60 percent, which is 25 percent more compared to the same period in 2021. And it is expected to increase on the days of official competitions, which go from March 2 to 6, to reach 100 percent occupancy.
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Similarly, it should be noted that 83 percent of the guests in the hotels in the area are foreigners, which will surely have a multiplier effect and will attract more international travelers who love extreme sports that can be practiced on these paradisiacal beaches.
The Governor also pointed out that with the completion of the second version of the Santa Veronica Seafood Festivalwhich will take place on March 5 and 6, and the activation of the parador Flipped Hat As a point of tourist information, gastronomy, handicrafts and music, it is expected to contribute to the increase in income in the area.
BARRANQUILLA
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BOGOTA COLOMBIA). Monday, February 28, 2022 (RPTV NEWS AGENCY). The International Federation of Football Association (FIFA) announced the expulsion of Russia from all its competitions, including the 2022 World Cup in Qatar.
The decision was made after a recommendation from the International Olympic Committee (IOC), so the host of the 2018 World Cup will not be able to attend the greatest soccer event on the planet.
The Russian national team had to play the European playoff against Poland on March 24, for one of the three places that are still pending in that confederation for the World Cup.
Between this March 2nd and 6th, the beaches of Juan de Acosta (Atlantic) will be the scene of World Kitesurfingwhich will take place in the sector of King’s Salt Flats.
The best kitesurfers in the world already promise to offer a show of international stature.
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Already in the area there are athletes of the sizes Mikaili ‘Mika’ sun of Brazil, number one in the world; the Spanish Rita Arnussecond in the ranking, and Valentin Rodriguezwho is part of the Colombia team.
The conditions of Salinas del Rey, which has a permanent breeze from the morning until late in the afternoon, allow you to practice the sport on these beaches because the wind is constant.
Hundreds of young people from all over the world come these days to the beaches of Juan de Acosta to practice this sport of sliding on the waves, using a board that depends on a kite that is the one that performs the function of traction.
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The World Cup parade begins this Wednesday with the registration of the athletes, the opening ceremony is scheduled for 11:00 am. Then, at 11:30 am, the GKA will have a technical meeting and the competitions will start from 12:30 noon to 4:00 pm.
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The Mayor’s Office of Juan de Acosta, National Police, the Navy and the Dimarallied institutions in the organization of the World Tour, work in coordination with the Secretariat of Economic Development, Sports, Culture and Tourism of the Atlantic in the organization of the World Cup.
“It is a real privilege to have the best kitesurfers in the world in our department,” said the Governor of the Atlantic, Elsa Noguerawho this Monday presided over the official launch of the tournament, with the presence of GKA Tour Manager Tom Hartmann.
“For the GKA, it is very good to have this type of event in a venue like Salinas del Rey and discover new places for the world of kitesurfing. We want Salinas to consolidate itself as a great place to practice the sport in Latin America,” said Hartmann.
BARRANQUILLA
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China is willing to work with the United States on a G7-led global infrastructure plan and welcomes Washington to join its Belt and Road Initiative, Chinese Foreign Minister Wang Yi said on Monday.
The Group of Seven (G7) richest democracies, consisting of United States and its allies, proposed the Build Back Better World (B3W) initiative in June to help developing countries meet infrastructure needs, as they sought to counter China’s growing influence.
“We are also willing to consider coordinating with the U.S. ‘Build Back Better World’ initiative to provide the world with more high-quality public goods,” Wang said in a video message at an event for the 50th anniversary of the Shanghai Communique, which marked the normalizing of relations between United States and China.
He said China is also open to the United States participating in the Belt and Road Initiative (BRI) and the Global Development Initiative, a call by Chinese President Xi Jinping in September for all countries to work towards sustainable development.
G7’s B3W initiative is seen as an alternative to rival China’s BRI, which was launched by Xi in 2013. More than 100 countries have signed agreements with China to cooperate in BRI projects like railways, ports, highways and other infrastructure.
Wang urged Washington to work with China in Asia-Pacific to build a “family of openness, inclusiveness, innovation, growth, connectivity and win-win cooperation”, rather than turn the region into one of conflict and confrontation.
The Shanghai Communique, a document which marked the end of isolation between both countries and issued during then U.S.
President Richard Nixon’s historic visit to China, meant that two major powers with different social systems were willing to coexist peacefully, he said.
Wang reiterated a call for the United States to stop supporting independence for Taiwan, a self-ruled island China claims as its own.
Marco’s story is typical of a movie script. From his birth, to the tenacity of his mother, Aurora Mateos, to bring together an international group of experts to promote a new therapy against Menkes disease tested in animal models in research at the University of Texas (USA) and whose results, published in the journal “Science”, are relevant.
The Sant Joan de Déu Hospital in Barcelona, with the pediatrician and geneticist Francesc Palau in front, is carrying out this exceptional treatment, without prior clinical trial, and which has the authorization of the Spanish Agency for Medicines and Health Products (AEMPS) for a child who lives against the clock.
They have only been in therapy for four weeks, but the doctors are already seeing improvements in Marco. They do not want to throw the bells on the fly, since there is still no data to prove it, but the fact is that in this time he has managed to crawl and stand up with help, something that at his age he could not do due to severe hypotonia (muscle weakness). , among other symptoms of the disease.
“Marco did not crawl and has started to do so. This can also respond to the natural history of the child and, instead of having a regression, he is advanced ”, he comments cautiously to EFE. Dr. Palau, director of the Pediatric Institute for Rare Diseases and head of the Genetics Service at Hospital Sant Joan de Déu.
What is Menkes disease?
Menkes disease is a serious multisystemic syndrome of copper metabolism that affects 1 in 300,000 newborns in Europe, according to data from the Orphanet rare disease portal.
It is characterized by progressive systemic degeneration and connective tissue abnormalities due to poor copper distribution that does not reach the brain and other organs.
This disorder is due to the absence or alteration of the ATP7A gene, which is located on the X chromosome, and this means that women are healthy carriers, they do not develop the disease, but they can transmit it to their sons, although boys can also being born with a “novo” mutation, with no family history.
The key is not only to provide the copper that Marco’s body lacks, but also for this mineral necessary for life to cross the blood-brain barrier and reach the brain.
Until now no drug does that function. Only one, the copper histidinateis used as palliative treatment but fails to cross the brain barrier.
Marco, a child with an early diagnosis
When the coronavirus pandemic hit Aurora Mateos She was working provisionally in Rome for the United Nations and had to give birth to Marco in that city, in June 2020.
“When someone sees a Menkes child, they don’t forget it,” says the mother, who explains that they are born with curly hair and very white skin, characteristics for a first suspected diagnosis.
He was immediately transferred to the Bambino Gesù Pediatric Hospital in Rome where there is a copper unit, something unusual, and that made it easier for the child to have a diagnosis at five days of life and at the time he was injected with copper histidinate, an orphan drug.
“It seems that in the first days of birth the brain barrier is softer and it is possible that the copper could have entered. Perhaps for this reason, Marco improves his mobility, he does not have seizures, his outward appearance is so beautiful… ”, the mother tells EFE, who emphasizes that he is an “intelligent and alert” baby.
Photo: Paula Bustos
Despite early diagnosis, one of the challenges of rare diseases, Menkes disease has run its course: “It is a lethal disease, Marco has lung, bladder, neurological problems… it is a multi-system affectation,” he explains. .
When the pandemic allowed it, Marco’s family moved to live in Malaga and in the Maternal-Children’s Hospital in that city they do clinical follow-up of the child.
“Our life is medicalized, visiting the hospital at least twice a week, we cannot travel to a place where there is no center prepared to care for Marco…”, says Aurora Mateos.
The little boy is immunosuppressed, “he is a crystal child, he cannot go to daycare and you have to protect yourself with a mask to touch him… the family is afraid to come and that is hard when you need support,” laments the mother.
Special care in times of coronavirus: “He is a child who frequently goes to the emergency room and with the pandemic you don’t know how to get it right.” Sometimes the collapsed emergency has given them a scare.
“I did not sit idly by”
Marco and his mother Aurora Mateos. Photo: Paula Bustos.
After the diagnosis, “I didn’t sit idly by,” says Aurora Mateos.
As a struggling mother, supported by her family, and with her experience as a consultant at the United Nations, she has managed not only to organize the association “Menkes International”but to promote a committee with twenty experts (doctors, biologists, pharmacists, lawyers…) from twelve countries that has managed the complex protocol of this exceptional treatment.
The starting point is in the study with animal models from the University of Texas, led by James Sacchettini and published in May 2020 in “Science”, in which one molecule is used, elesclomolto transport copper and cross the brain of mice with ATP7A gene deficiency.
“The results are striking, with two doses the mouse changed completely in terms of mobility, hair and survival. From only living twenty days to reaching almost 190, which in a mouse is a lot”, explains Dr. Francesc Palau, who coordinates the aforementioned scientific committee.
The scientist James Sachettini was involved from the beginning in getting this drug to Marco. The following steps were complex until elesclomol-copper was synthesized in a laboratory in India.
The Spanish Medicines Agency authorized the importation of the drug and the design of the “exceptional treatment” for Marco at the Sant Joan de Déu Hospital, with experience in previously caring for seven other patients and with an open line of research on this rare disease.
Every week, since January 31, Marco and his family travel from Malaga to Barcelona so that the little boy receives a subcutaneous dose of elesclomol-copper.
“We have started with very low doses, subtherapeutic, to gradually reach therapeutic but non-toxic ones. At the same time, we measure copper in the blood to see if we are raising elesclomol-copper and lowering histidinate”, explains Palau, also former director of the CIBER for Rare Diseases.
A clinical trial on the horizon
After a few months, data will be obtained that will determine the efficacy of this treatment in Marco and then a clinical trial will be opened that must be authorized by the regulatory agencies and whose objective will be to test the efficacy and safety of the therapy.
“I have a commitment to the Medicines Agency to design this trial. We are in contact with the North American company that owns the drug, which is interested,” says the researcher.
One of the keys is to select the candidate patients: “If it worked in Marco, it doesn’t mean that it works in all patients, we have to be careful,” says the doctor, who is already receiving calls from hospitals in other European and Latin American countries.
The hope is that this therapy pioneered by Marco can pave the way for other children with Menkes disease.
“Marco is what I love the most and we are going to fight this war until the end, no matter how many battles there are, no one is going to give up,” concludes Aurora Mateos.
Vilmaris Martínez works as a domestic worker in Barranquilla. Her daughter Brenda goes to the District Educational Institution every day Mercedes of Saint Paulwhere he received his academic training.
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Brenda is part of more than 125,000 children and young people in the city who daily receive a food supplement in the city’s public schools, through the School Feeding Program (PAE).
After expanding the coverage of beneficiary students in the midst of the health emergency and serving the migrant population, the capital of Atlántico became the first Colombian host city of the World Food Forum.
This forum is led by the World Food Program (WFP) and will be logistically in charge of the Food for Learning Unit (UAPA) of the national government.
The director for Colombia of the World Food Program (WFP), Carlo Scaramella, referred to Barranquilla as “a very positive example of how the issue has been managed, an intervention model that we want to make visible at a regional and global level.”
For the food security of vulnerable communities, the district administration brings food to children through the Child Development Centers (CDI), with the Early Childhood program; older adults and homeless people, in addition to the PAE.
The forum, which will take place within the framework of Barranquilla’s 209th birthday, arrives in Colombia for the first time and will bring together representatives from 18 countries.
The agenda stipulated in Barranquilla
The schedule includes a scheduled visit to schools officials, so that the guests can demonstrate the execution of the program in the city, becoming a showcase to show Barranquilla’s practices in food safety at an international level.
In order to continue delivering the food supplement to the more than 125,000 students benefiting from the PAE, the District completed the bidding process to award the program to the operators who will be in charge of supplying the rations.
This will give continuity to the program that began this year on last january 31 (start date of the school calendar), as communicated by the District.
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The award of PAE 2022
The proponents who obtained the award were: Fundación Semillas de Prosperidad, Fundación Barranquilla Solidaria, Generación Colombia SAS and Servicios de Alimentos NP SA
In accordance with the fulfillment of the requirements by the proponents, each operator was assigned the attention of a student population and a specific program modality.
BARRANQUILLA
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40 years ago an infectious disease changed the world. In 2020 another infectious disease altered it again.
The HIV/AIDS epidemic and Covid-19 have had a different nature, magnitude and scope, but great similarity in terms of impact on society and health, highlighting the mistakes made and the structural problems of our health system.
“Have we learned something from the management of both health crises?”, they ask from the Spanish AIDS Research Network (RIS).
The answer to the question has been provided by 11 experts from various fields of public health and civil society in a documentary film: ‘Walks with Science: HIV and COVID 19. Two epidemics face to face’.
“People say that the COVID-19 pandemic is much more terrible and it seems to me that, in part, it comes from oblivion. For those of us who lived through the AIDS epidemic, the impact was extraordinary, because it was much more exhausting and lasted much longer.
compares Dr. Santiago Moreno, Head of the Infectious Diseases Service at the Ramón y Cajal University Hospital.
The film compares the situation that occurred in the 1980s and 1990s with the current one in order to improve public policies and the response to SARS-CoV-2, as well as for future similar health emergencies.
HIV and Covid-19face to face
The two epidemics generated fear, bewilderment and a health emergency situation that brought health to the fore.
The difference between the two has been the society of each time and the scientific advance of the moment.
«The AIDS pandemic was much more exhausting than the Covid one. I remember very hard years. This has been strong, but different»
says Dr. Santiago Moreno
Dr. Santiago Moreno, head of the Infectious Diseases Section of the Ramón y Cajal Hospital in Madrid and inaugural speaker at the I National Covid-19 Congress.
The documentary directs the subject to the comparison of the performance at the moment in which AIDS appears with the new covid epidemic, being reflected “the failures committed as a society, as health authorities and health professionals”.
“We were not prepared to face research challenges in the face of this type of health problem. This requires money and infrastructure that we do not have”
holds the doctor.
Pandemic Information Management
The information at the beginning of the HIV/AIDS pandemic arrived late compared to the information transmitted about covid-19.
The experts participating in the documentary analyze this management in both pandemics.
On the one hand, the media associated the HIV pandemic “with gay men, using denigrating terminology such as gay cancer,” he says. Juanse Hernández, Coordinator of the NGO Working Group on HIV Treatments (gTt-HIV).
Juanse Hernández, Coordinator of the NGO Working Group on HIV Treatments (gTt-HIV). Photo taken from the documentary.
In the case of covid-19, information management has taken another course: “immediacy regardless of relevance.”
«The fact is that there has been so much information that an infoxication has occurred: an increase in information that does not allow the person to sift through to determine which is the most important for their health. It happens so quickly and in such a messy way that you don’t have time to sift through what’s important and what isn’t.”
explains the coordinator of gTt-HIV.
For her part, Dr. Maria Jose Fuster has exposed the “sensationalism” in the way of communicating in the Spanish media.
“There has to be another way of reporting that doesn’t generate a sense of fear and a sense of threat all the time. And here there is a clear parallel with HIV… the words, for example, there is a dehumanization of data, I have not heard any media say ‘today there are 700 new people with coronavirus’ they always talk about ‘infected’».
María José Fuster, executive director of the scientific society Seisida.
Julia del Amo, director of the National Plan on AIDS. Photo taken from the documentary “Two pandemics face to face”
The doctor Julia del Amo, director of the National Plan on AIDSmakes it clear that this pandemic has shown “that we have low-quality data and that they arrive late”, making it necessary to invest “in information systems to have an improvement in the quality of the data”.
“Communication is important in the field of public health because people do not reject what they know and understand. People can change our behavior if we understand that it is done for our own good and to be able to do it we have to understand it»
Julia del Amo.
science time
Society has demanded speed from science in terms of providing solutions in the current pandemic, a pressure that has been added to the competition to have the scoop by scientific groups.
“Society must understand that the results of research are not magical, but rather the result of scientific work,” emphasizes Esteban Martínez, a doctor and researcher at the Hospital Clinic in Barcelona.
This same demand from society has not been so demanded in the HIV epidemic, which 40 years later still does not have a vaccine.
“If the same resources and efforts dedicated to the covid vaccine were used for the HIV vaccine, the process would be accelerated, but not at the same speed that has been achieved with covid-19 because they are totally different viruses,”
exposes the doctor Beatriz Mothe, clinical physician at the Germans Trias i Pujol University Hospital.
The doctor emphasizes the importance of learning in these situations.
The coronavirus has thrown something positive on science and that is that “without research we would not be where we are today, vaccinating and diagnosing. The pandemic has put science in a more relevant place in society.”
Lack of resources
Mercedes Morales and Mayca Gomez They are nurses at the Hospital 12 de Octubre in Madrid. Her experiences in both the HIV and covid-19 epidemics coincide in that the health system is in need of resources.
“Health is not something isolated, it is the set of many things. A society that does not care for the people who care for them is going to affect health»
says nurse Mayca Goméz.
Mercedes Morales and Mayca Goméz, nurses at the Hospital 12 de Octubre in Madrid. Photo taken from the documentary
The shadow of the investigation
Science has been the key to returning to normality. The joint response of organizations and scientists has made it possible to move towards the light at the end of the tunnel of the covid pandemic.
The shadow of science in Spain prevents further progress in this sector, because “investment in science is ridiculous” and the loss of “younger generations” is increasing, exposes José Alcamí, researcher at the AIDS Immunopathology Unit of the Carlos III Institute.
“The solution will be scientific or it will not be. That solution will be solidary or it will not be. The solution is either global or it will be a false solution»
researcher Jose Alcami.
Stigma between pandemics
In HIV, discrimination has been for years an issue to eradicate for all organizations and associations dedicated to improving the lives of people with this disease.
“HIV is a tangible health threat and we are programmed to avoid the disease. But it is also a symbolic threat to traditional beliefs, associating itself with a series of behaviors considered deviant in those years»
exposes María José Fuster, executive director of the scientific society Seisida.
“Much remains to be done,” claims the President of CESIDA Ramón Espacioswho affects discrimination today to the point that those affected by HIV “continue to live in solitude and shame.”
“There are still 50-odd countries in the world to which you cannot travel as a person with HIV”
emphasizes the president of CESIDA.
Covid-19 has suffered its inequality in the health field, since those who are considered the “heroes of the pandemic” are accused by others as “accomplices” of it.
“We have gone from heroes to villains without giving ourselves time to meditate. They say we tell things that are lies»
nurse Mayca maintains.
All the statements highlight a common point: the importance of science and scientific structures as a response to health crises.
As the infectious disease expert Santiago Moreno says, pandemics will continue to arrive and we must be prepared, but this will not be possible if we do not take into account that “the solution will be scientific or it will not be” (researcher José Alcamí).
Turkish President Recep Tayyip Erdogan is visiting the United Arab Emirates, hoping to repair strained ties. Analysts say shared concerns over Iran could provide common ground.
Erdogan said that his two-day visit to the United Arab Emirates, which began Monday, aims to ease years of tension and rivalry with the Persian Gulf state.
He said that with the visit, Turkey aims to develop the momentum it has achieved and to take the necessary steps to bring relations back to the level, he said, they deserve.
Turkey has found itself increasingly isolated across the Middle East, due largely to Ankara’s support of the Muslim Brotherhood Islamist group, something that has caused unease among many Middle Eastern leaders.
Turkish President Recep Tayyip Erdogan, left, and Abu Dhabi Crown Prince Sheikh Mohammed bin Zayed Al Nahyan, second right, arrive at Qasr Al-Watan in Abu Dhabi, United Arab Emirates, Feb. 14, 2022.
Teacher of international relations Soli Ozel at Istanbul’s Kadir Has University says Erdogan’s UAE visit is part of a wider regional reset, with Iran providing crucial common ground.
“Turkey’s charm offensive has targeted several countries, with one of them the United Arab Emirates. Both countries have an interest, along with all the western countries, for Iran not to be so influential as it is today,” he said.
Turkey is increasingly in competition with Iran, from the Caucasus to Syria.
Last week Turkish pro-government media reported several alleged Iranian agents were arrested in Turkey in a joint Turkish-Israeli intelligence service operation to thwart the assassination of a Turkish-Israeli businessman.
The arrests came after Iran recently cut off natural gas supplies to Turkey for more than a week, causing much of the country’s manufacturing sector to shut down for several days.
Asli Aydintasbas, a senior fellow at the European Council, says there are suspicions the gas shut-off may have been politically motivated.
“We’ve seen Iran cut off the natural gas for Turkey ostensibly because [it] had something breaking down or it [Iran] needed it for its internal market. But it’s no coincidence that this happened after a meeting between Vladimir Putin and Iran leader [Ebrahim] Raisi. This was clearly a message to Turkey,” she said.
Iran and Russia are working closely together in Syria in backing the Damascus regime, while Turkey backs Syrian rebels. Moscow has also voiced its anger over Ankara selling armed drones to Ukraine.
Analyst Ozel warns that the Turkish-Iranian rivalry is likely to escalate, with Ankara sharing Western and Middle Eastern countries’ fears over Iran’s nuclear energy program.
“If Turkey wants to jump on board in that struggle, then yes, we can expect Turkish-Iranian relations to be a bit testy. On the other hand, Turkey and Iran manage to have competitive and cooperative relations for centuries, so they are pretty well versed on how to do that,” he said.
If there’s a breakdown in talks between Iran and the international community to resolve concerns over Iran’s nuclear energy program, analysts warn that Turkey’s effort to balance competition and rivalry with its Iranian neighbor could face a greater test.
The young designer María Prats has wanted to change the way of seeing the world of epilepsy with a project full of colors with which she wants to demonstrate that “a disability is not an obstacle to achieving dreams”
María Prats is a cheerful and optimistic girl who likes peace and tranquility, virtues that she has reflected in her project ‘Colours. Creativity & Design’.
This young woman is 21 years old and lives in Barcelona. She spent her childhood in the San Joan de Déu hospital after suffering a complicated birth that caused her trauma.
Mary currently lives with refractory epilepsy, a disease of the nervous system that produces brain alterations and that makes it difficult to control through pharmacological treatment.
This problem leads the young woman to live a complicated daily life. Her illness forces her to sleep a minimum of 10 hours a day to be able to face the day to day with energy and, above all, to prevent possible crises.
Within the framework of International Epilepsy Day, EFEsalud spoke with María and her mother, Chus, and also with her doctor and neurologist, María del Mar Carreño. The colors of life
María knew from a very young age that her passion was to paint and create. She has always “expressed herself through colors,” her mother tells us, which is why “we decided to professionalize this profession so that it would become her life project.”
“He wants to fill the world with colors. For Maria colors are synonymous with joy and happiness. Her goal is to be able to pass on this happiness to everyone through her designs »,
Chus account.
Maria Prats.
The young designer has never doubted her abilities, which is why his work is not directed to the approval of his public, but to his own satisfaction to elaborate what for her is “sharing the magic of colors”.
“A disability is not an obstacle to achieving our dreams and being successful. I paint to express my joy of living, sharing the magic of colors is my gift to the world. I can’t change the world, but I can change the way of seeing it.”
Maria shares.
“It is not a mental problem”
The Dr. Mª del Mar Carreño, president of the Spanish Epilepsy Societydescribes Maria as a “compliant, tenacious and very good-natured patient, with her family and with the health personnel”.
He believes that his project “is a benefit for María because it helps her work on attention, creativity and organize her time”.
“The project is very good for the entire community of patients with epilepsy, it gives visibility to the disease and helps reduce stigma”,
says the expert.
The stigma that this disease suffers in society is due to the little knowledge that is had of it, reaching confused with a mental problem.
“I think they don’t understand it and they misunderstand it. Crises are scary and frightening because there is little information, few people know how to act before a person who suffers a seizure, “
tells the young Maria.
Her doctor agrees and reflects that part of this stigma is also due to the fear of the disease, “a problem that limits the patient’s social and work life.”
«To integrate socially we recommend participating in all kinds of activities that encourage contact with other people and where activities that interest them are carried out as long as they do not pose a potential risk. For example, risky sports are contraindicated, but most team sports can be practiced.”
advises the expert in epilepsy.
More inclusion, empathy and self-esteem
María has given us the keys so that her quality of life, as well as that of all patients, can be better.
In inclusion, empathy and self-esteem is the key. Well asks that “they be valued for what they can do and not be treated differently”.
“I always say that I don’t have a disability, I’m lucky to have other abilities and believe in them,”
says the young woman.
“My dream is to be able to create an inclusive space where other young people with other abilities can express themselves and share projects. Together we can do great things and show the world how great we are.”
Designs by Maria Prats.
life with epilepsy
The drug resistance that Maria suffers from in her illness limits much of her daily activity.
Her crises prevent her from being alone since “they need rescue, that’s why there is always someone looking out for me.”
“The worst thing about crises is that they are unpredictable, you never know when or where you might have one,”
says the young designer.
In the case of this young woman’s epilepsy, the treatment includes a combination of drugs that allow her seizures to be controlled.
However, the refractory nature of his epilepsy leads him “often to change some drug to maintain stability.”
“Over time, the body gets used to it and some medications lose their effectiveness, so you have to change your medication, try a new combination and hope it works. This always generates fear and anguish”,
Mary describes.
Therapeutic adherence is essential to control epileptic seizures, as well as “avoiding those factors that can worsen them, such as lack of sleep, excessive stress, or alcohol and drug use“, advises the neurologist.
The evolution of pharmacology in epilepsy has made it possible to reduce serious side effects in the short and long term and to complement other existing medicines.
In fact, “for patients in whom medicines do not work, there are alternatives such as surgery, certain diets or brain stimulation with devices.”
In uncontrollable cases…
There are many types of epilepsy. When the disease is controlled, the chances of having an education and working and social life is comparable to people who do not have epilepsy.
In the case of uncontrolled crises, which continue despite the correct medication or in addition to epilepsy they suffer from an intellectual disability, the “special needs are not always covered”.
“In general, you have access to special education, but the situation is quite complicated to get a job. I believe that more resources should be developed in this field, such as having more places in companies for people with disabilities and more occupational centers”,
claims the expert in neurology.
It could be epilepsy and you don’t know it
This disease, like others, can be misdiagnosed. Epilepsy can be confused with “vasovagal or cardiac syncope and with psychogenic crises,” explains Dr. Carreño.
“There are many diseases that can give similar symptoms, such as migraine, metabolic disorders or transient vascular accidents,”
A 7-year-old girl has become the highest-paid female YouTuber in the world based on her content, which is seen by millions of people.
Her name is Anastasia Radzinskaya and through her channel called ‘Like Nastya’ she would have earned about 28 million dollars in 2021; she being one of the ten ‘youtubers’ who earned the highest income in the world, according to Forbes magazine.
This girl was born in the south of Russia with cerebral palsy and the doctors assured that there was a possibility that she could not speak and walk.
In this way, Anastasia began to have different treatments and language therapies to improve her condition and her parents, Anna Radzinskaya and Sergey Radzinskij, decided to document her entire process through a YouTube channel without thinking that their daughter would become a celebrity.
“We were told that Nastya would not walk or talk. Either the treatment and our love helped, or the doctors made a mistake with the diagnosis,” Radzinskaya said a few years ago.
The reception on the networks was so great; who decided to sell their construction company to use that money to develop quality audiovisual content focused on their daughter.
At his young age; Anastasia gradually became a star and through the videos that transmitted her daily life, she has managed to accumulate more than 85 million subscribers on her different channels.
See more: J Balvin, Natti Natasha and other celebrities who became parents for the first time in 2021
The girl’s videos now have animation, music and dubbing into other languages such as Spanish, English, Arabic, among others; which has allowed her to reach a wider audience in the world and has guaranteed her success on YouTube.
Its content is especially aimed at children and generally documents the daily routines and experiences that they live in the walks and activities that they do with their family; as well as tips on how to prepare to go to school or do different crafts.
In fact, his most viewed video has already accumulated more than 900 million views and therefore has nothing to envy to renowned artists and singers in the world.
This impressive reach of Internet users and visits has allowed her not only to generate advertising revenue on YouTube but also to sign contracts with well-known brands and companies that want to do campaigns with her.
in the top 10
Anastasia entered Forbes magazine’s list of the world’s ten most valuable YouTubers in 2019 and has since surpassed her own income records: $10 million (2019), $18 million (2020) and the staggering figure of 28 million dollars during the year 2021.
The family currently lives in the United States and due to the success that their daughter has had, they have been able to give themselves some luxuries such as traveling by private plane, traveling and staying in the best hotels in the world.
Precisely, the success of this seven-year-old girl is thanks to the work and dedication of her family. For example, her father works in business and finance; while her mother is in charge of writing the scripts, organizing the scenery and verifying the quality and editing of the videos before uploading them to the channel.
Finally, at her young age Anastasia is an Internet celebrity and all her videos continue to accumulate millions of views; so she since she already dreams of becoming a businesswoman and actress.
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Kefir, a cat of the Maine Coon breed, has traveled around the world due to its surprising size and great beauty.
This breed is characterized by being large, so much so that it is nicknamed ‘the great gentle’, precisely because in addition to being a large breed, the character of these kittens is usually quite playful and sociable. This breed originated precisely in Maine, USA, is considered the largest non-hybrid breed among domestic cats. According to Wikipedia, these cats can reach up to 8.2 kg in the case of males, while in females, their weight can reach 5.4 kg. If we talk about size, the encyclopedia indicates that the Maine Coon, like Kefir, ‘the largest cat in the world’, can measure up to 97 centimeters with everything and tail.
Although it is not really known for sure how tall Kefir is, it is known that although he is two years old, he has not yet finished his full growth, so it is expected that his size will continue to increase.
The owner of Kefir, ‘the largest cat in the world’, is Yulia Minina (wink), who has revealed to various media that on many occasions her kitten is mistaken for a dog, since that size is not usual in domestic cats .
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Kefir, ‘the world’s largest cat’ weighs more than a 2-year-old
According to Yulia, she never thought her cat would grow so big “I could never have thought that an ordinary baby could grow so big. Not only did he grow big in size, he’s also a very smart cat and always behaves calmly,” she told The Mirror.
The proud owner of Kefir has given numerous interviews in which she tells how the feline white gets all the attention when she receives visitors. She also assures that Kefir loves caresses.
On the other hand, Yulia Minina has said that her cat Kefir likes to sleep in her bed, on her. Clearly this wasn’t a problem when Kefir was a little cat, but now, this has become a bit of an inconvenience.
“Now that he has become a big heavy cat, it is difficult for me to sleep like this,” Yulia revealed.
With the amazing photos of Kefir that have gone viral, many have suggested that this is a photographic trick, but Minina assures that in no case is it Photoshop.
Have you ever thought about how much a cat of this size can eat? Would you like to have a cat like this?
BOGOTA COLOMBIA). Friday, February 4, 2022 (RPTV NEWS AGENCY). The Monserrate Cerro Abajo Race, considered the longest urban downhill track in the world, will take place on the hill and will have the best 25 riders from 12 countries competing.
On this occasion, the skills of the competitors will be put to the test on a highly demanding track with a 2.4-kilometre course, 27 obstacles and more than 1,000 stone steps, which already promise to offer a great sporting spectacle.
“We are happy to once again hold the world’s largest urban downhill competition in a setting of tradition and nature such as Monserrate. Having in the city the best exponents of a sport that is gaining more and more followers in new trends and betting on the bike, fills us with pride. Through various platforms and television channels, fans will be able to follow the race step by step,” said Blanca Durán, director of the IDRD.
In action will be 25 of the best riders on the planet, who will represent 12 countries in the 2022 edition of this competition that takes place in Bogotá for the fifth time. Costa Rica, Chile, Brazil, Peru, Argentina, Ecuador, Mexico, United Kingdom, New Zealand, Germany, France and Colombia, which will have eight representatives, will seek glory at 3,152 meters high.
Followers and fans of urban downhill will be able to follow the emotions of the Monserrate Cerro Abajo race step by step, through Red Bull TV, whose transmission will begin at 10:30 am, and in the semifinal stage on YouTube, Twitch, Star and Signal Colombia.
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